It is the intention of this blog to provide some insight into the data collection activities that take place in the field as they pertain to the Jiri Eye Study (JES). So, the activities that take place in a single day will be parsed out over the next 11 days of sampling.
The JES research team is a multidisciplinary unit experienced in ophthalmology, epidemiology, genetic epidemiology, biological anthropology, medical anthropology, physical anthropology, population genetics, molecular genetics, statistical genetics, and medical sociology. For any member of the research team, their day may start between 06:00 h and 08:00 h and end between 15:00 h and 20:00 h.
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It is imperative that individuals are assigned their correct ID number. The Jirels are linked into one very large pedigree and it is not uncommon for some of them to have the same name. Thankfully, the research activities that have been conducted in the Jirel population over the past 25 to 30 years has enabled a comprehensive pedigree database to be established, maintained and updated on a regular basis. By knowing the parents, grandparents, children, siblings, etc. of the individual we can ensure the correct person is identified and their correct ID number is assigned.
Individuals are then given a JES ID card which ensures the correct details are entered into computer records at several of the ophthalmic data collection stations (we'll see these in the coming days). These ID cards are handed back to the research staff at the conclusion of the individual's clinic visit.
Individuals complete the consenting process to (voluntarily) participate in the research activities.
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